How many days will I need to follow up with my hematologist/medical oncologist?
After discharge, you may be asked to follow up weekly or twice a week for the first month. The frequency of follow-up will decrease with time based on your physician’s discretion. If you achieve remission beyond 6 months, this frequency may be shortened to twice a year, but it is recommended that you continue follow-ups for up to 15 years. If there are any adverse reactions or active infections, your haematologist/medical oncologist may indicate more frequent follow-ups.
Are there any special precautions I need to take after infusion with NexCAR19 and discharge?
Following are some of the precautions we recommend:
- Consume meals cooked under hygienic conditions
- Keep away from crowded places, to decrease the risk of infection (isolation from family or caregivers is not necessary)
- Follow up regularly with your hematologist/medical oncologist as per their recommendations
- Do not start or stop any medications without consulting your hematologist/medical oncologist
- In the event that you are seeking treatment for any other condition, inform your physician about these conditions when consulting for treatment with NexCAR19
Questions to ask your doctor
- What is NexCAR19?
- What are the steps I need to follow during the treatment cycle with NexCAR19?
- Can I expect to achieve remission with NexCAR19? Is it the right treatment for me?
- What are the possible side effects of NexCAR19? Will I be receiving other treatments and/or supportive medications with or after NexCAR19?
- What are the steps involved in the process of administering NexCAR19 based on my condition?
- Will I be receiving any treatments before Leukapheresis?
- When will my Leukapheresis be scheduled? What do I do to prepare for it?
- When can I expect the NexCAR19 product to be infused? What should I do to
- prepare for Conditioning Chemotherapy?
- After infusion, how frequently do I follow up to ensure that my response assessment is comprehensive?
- What can I expect after I am discharged from the hospital?
- I need to plan financially for CAR-T cell therapy. What are the costs involved in the entire treatment cycle, and supportive care? What are the long-term costs?
- How do I get insurance provider support for NexCAR19?
- Are there any Patient Access Programs or Supporting Resource Providers for NexCAR19?
- What are the best practices for me after infusion? What would I need to modify in my day-to-day life?